Author: Sheri Denkensohn-Trott
I have a procedure every year that I do as an outpatient in a hospital. It is not a big deal, but mostly done precautionary reasons because I have a spinal cord injury. I recently had the procedure, and all went well. After the procedure I go to the recovery room for about one hour, whereafter I usually wake up relatively quickly.
When I was fully awake and the nurse felt that my vitals were fine, she called my attendant who came to help me get dressed. On with my sweatpants and sweatshirt, as you do not dress up for the occasion. Plain as possible. No jewelry, no bra, no deodorant, or powder. I know the drill.
I was not able to eat or drink after midnight, so by 4:30 PM I was having visions of coffee. Luckily there was a coffee shop in the hospital, and I was able to grab a cup before they closed. And it was heavenly! I got home, had some scrambled eggs and pancakes (a
backwards day of breakfast for dinner), and went to bed to watch TV and relax.
The next morning, the “beautiful” bag from the hospital with my belongings was hanging on my closet door. I asked my attendant to go through and get rid of the bag because after multiple hospital stays, I hate having bags like that around. She took out a pair of underwear that looked like boxers. I asked her why I had them. She answered, “You wore a pair home.” Seriously? They are boxers. I guess the hospital thinks they are unisex.
When the hospital asked me for feedback on my procedure and my comments about the hospital, I decided to leave out the boxers. But let’s just say, I have not kept the extra pair and the pair that I wore home. No way. Not part of my wardrobe.

This is likely not surprising to those who know me. My nickname at my former job was “Speedy,” because I roll quickly and keep my chair at the fastest setting. This is a good idea when I’m out rolling in the bike lane, but probably not the best around the house (the walls show it), in an ACCESSIBLE store (I have dragged some clothing racks around), getting in and out of my van (I have gone off the ramp several times), and many others. My most epic story is caused by talking and driving. I was at the US Supreme Court for oral arguments and was talking to my friend as I was rolling out to the ramp. The white marble made it hard to see the difference between ramp and steps, and before I knew it, I was flying down steps. Luckily, guards were present and within seconds they grabbed me, had my chair in place, and I was sitting up. My poor friend almost passed out while I wheeled along my merry way. Even after all that, overall, I’m viewed as a good wheelchair driver. With exceptions, the following being one of them.
my phone and something to drink or eat. Even with my new and well thought out design of my desk, for some reason, there have been a few incidents when I am driving forward and I go too far, hitting my joystick against the desk and my stomach hard against the wooden shelf that holds the keyboard. My wheels start spinning in place and the pressure on my abdomen nearly makes me pass out. This doesn’t happen frequently, but has occurred on a few occasions. I’m able to call for Tony or my attendant to come to the office. After grasping that I have done this again, they take my chair out of gear and are able to manually move it away from the desk. That allows me to sit up and slowly regain my ability to think straight.
In this instance the joystick was pretty bent out of shape, but luckily my neighbor was at least able to get it to where it was drivable. I went to the shop the next day and it was fixed within five minutes. The technicians and I joked about my “Demolition Derby” status. The receptionist laughed because she thought that I had been competing in an actual Demolition Derby. Hilarious. I don’t know if such tournaments for wheelchairs exist but given the choice I’d rather be stuck under my desk and have it as a nickname.
have a significant disability like me, autonomy and independence are pretty big deals. I would be lying if I said that physically I was the same as I’ve been for years. My disability (Friedreich’s Ataxia, FA) is progressive and over the years my independence decreases at a rate greater than people without FA.
NBA, and NHL games, as well as other events.